Patient 
Advocacy 
Council

The Friends of NIDCR Patient Advocacy Council (PAC) is comprised of non-profit organizations who work together to 1) support oral health research and NIDCR and 2) transfer oral health research from bench to bedside. 

At the end of the day, research is conducted to improve the health and lives of others. Below are quotes, stories, photos and videos that demonstrate the impact the Patient Advocacy Council has on the lives of many.

The FNIDCR PAC is co-chaired by Kathy Hammitt and Mary Fete.

View all the current members of the Patient Advocacy Council.

  


International Pemphigus and Pemphigoid Foundation (IPPF)

www.pemphigus.org/awareness
healourskin @healourskin


Patient Story: One Man’s Journey: Discovering, Battling, and Overcoming Pemphigus Vulgaris by Stu Zirin


It is my first-year anniversary of being diagnosed with Pemphigus Vulgaris. The severe and painful blistering in my mouth and throat have subsided. My journey into discovering what was wrong with me wasn’t as long as it is for most. My goal here is to help others take control over their health — especially when it is threatened by a disease that mystifies even the medical community. I didn’t know about the International Pemphigus and Pemphigoid Foundation (IPPF), so I was on my own when I was diagnosed, with no support from others who have suffered from this disease. I was able to self-diagnose through intense research and seek out the right type of treatment. Today, I’m in remission.