FDysplasia Youtube Channel
The Fibrous Dysplasia Foundation is a community-led nonprofit that fights back against fibrous dysplasia, McCune-Albright syndrome (FD/MAS), and related rare bone diseases. FDF serves people affected by FD/MAS through programs of research, education, and advocacy.
Fibrous dysplasia (FD) is a rare bone disease that causes weak bones, pain, and deformity in one or several bones of the body. McCune-Albright syndrome is the combination of FD, abnormal hormone levels, intramuscular myxomas and/or cafe-au-lait birthmarks. Both FD and MAS, or FD/MAS, are caused by the same genetic mutation. Symptoms range from mild to severe, and people living with FD/MAS can live full and prosperous lives. There is no cure however, and there are no treatments to stop or slow a major symptom of the disease, the growth of malformed bones. These malformed bones cause chronic pain, weak bones that are easy to fracture, and differently-shaped bodies. For more information, read the About FD page or visit the FD Foundation library of research articles published about FD.
Visit the Fibrous Dysplasia Foundation Video/Podcast Library to view past conference presentations.